A Halifax man says he no longer feels alone in dealing with a rare genetic condition, thanks to an unexpected text from Oklahoma.
Craig MacDonald has been living with AMACR deficiency — a neuromuscular disorder that is genetic — for the past 25 years. For all that time he’s been looking for others with the same diagnosis.
Tasha Hollander of Oklahoma had also been searching the globe for answers after her five-year-old son, Hudson, was diagnosed. She came upon MacDonald’s name.
An unexpected message
Lying in a hospital bed this September, MacDonald got a call from an Oklahoma number. He assumed it was a